This week’s Community Corner spotlight shines on the NoahBRAVE Foundation!
Brother Love recently sat down with Lori and Tom Evans to explore their and the NoahBRAVE Foundation’s impactful work in Nashville.
The organization was founded by Lori and Tom in 2021 to honor their late son, Noah Evans. Noah was only 12 years old when he was diagnosed with a Diffuse Midline Glioma (DMG) brain tumor. After 16 months of battling through brain surgery and multiple rounds of chemo and radiation, Noah passed away. Lori and Tom created the foundation to honor their son and support other families facing unimaginable struggles.
Noah was, by all accounts, your average 12-year-old boy, full of life and spending his days immersed in school, soccer practices, and improv classes. His journey took an unexpected turn in July 2019, when occasional headaches began to plague him. These headaches became significantly more frequent and severe by early September. Noah’s parents did not learn about a mass until an MRI on September 18th, 2019, despite multiple prior doctor visits yielding no clear answers. Just days later, a biopsy revealed a Diffuse Midline Glioma, one of the rarest and most aggressive forms of brain cancer, giving Noah only 6 to 12 months to live.
The NoahBRAVE Foundation provides personalized support to families, offering a lifeline of financial and emotional assistance. This includes help with the in-treatment costs, travel expenses, mortgage/rent, utilities, food/groceries, and so much more. In addition to direct aid, the organization raises awareness and funds research for kids and families with terminal brain cancer. The foundation also aims to provide a community and support system, ensuring no family facing this situation fights alone.
Listen to the full interview down below.
Visit the NoahBrave Foundation to learn more about the organization and how to donate. If a family member is battling DIPG/DMG brain tumors, please reach out to them directly for support and resources here.
