What is Cystic Fibrosis? Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States and an estimated 105,000 people have been diagnosed with CF across 94 countries. In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. This means mucus begins to build up in places it shouldn’t, causing things things like liver disease, respiratory failure, and being unable to absorb nutrients. Fifty years ago, kids with CF struggled to survive through kindergarten. Today, because of improved medical treatments and care, more than half of people with CF are age 18 or older. There is no cure currently, but the foundation is working to change that.
Interview With Brenda Price, Mom To CF Fighter Bristol
Bristol is just like any other 6 year old girl; she loves to dance, read, and listen to Taylor Swift. Similar to Delaney, she also sports a red lip every day. Brenda joined us on air to talk to tell her and her daughter’s story. She ends her interview giving thanks to supporters of the foundation: “Thank you so much for everyone who’s making a difference, not just in my daughters life, but every person who has CF.” Donations, big or small, can make a huge impact on the lives of those with the condition. Hear more about Bristol’s fight below:
Interview With Ron Taylor, Dad To CF Fighters Levi & Carolina Mae
Levi and Carolina Mae were both diagnosed with CF incredibly young. Taylor was unaware of CF before Levi’s diagnosis, with only a twenty five percent chance that he could be born with the disease. Even just nine years ago, so much less was known about CF. Now, Levi and Carolina Mae have more knowledge and access to life-saving medication made possible by the CF Foundation. Hear more about their journey below:
Interview With Amanda Walker, Mom To CF Fighter Emmett
CF fighter Emmett loves to play sports. A travel baseball player, he loves to be active. Despite being diagnosed at only a month old, he is determined to live his life to the fullest extent. His mother, Amanda, filled us in on how the CF Foundation has helped them immensely. Necessary medications are expensive, and the Foundation helps to provide funding and research to continue to help those effected by CF. Listen to Emmett’s story below:
Interview With Delaney Fanning, Raising Awareness For The CF Foundation
Delaney has made it her mission to fundraise five thousand dollars for the Cystic Fibrosis Foundation along with Nashville’s Top 30 Under 30. In the process, she has created a live show, an auction and a radiothon where we get to hear the stories of CF fighters. This cause is so important, and if you feel called to donate, please do so here. Learn more about Delaney’s story below:
